I know how we all get on those days leading up to your vacation…they can grow so long and life just seems to be getting harder. In this, I share with you….with an attempt at a bit of humour!
Enjoy your trip to Mexico….but for me, I shall head to CHANGEpain for my Paincation!
As you enjoy the beach I’ll be paying private care fees at CHANGEpain Clinic in Vancouver for my nurse Tammy and Pain Specialist Dr. Brenda Lau who will administer my long awaited Ketamine IV Therapy…this is MY vacation. My vacation from pain.
Not from its entirety but a small shaving off of the pain I endure in a single day will be worth the trip in a ship! Well BC Ferries anyway and thank goat for their gift shop!
I know you have worked hard to save for your holiday, I have too. Living with Chronic CRPS Pain I make approx. $.39 a hour. I don’t get paid for overtime and raises what are they? I typically don’t have days off, or hours off from pain until its Ketamine IV time again. This is the only treatment that will allow my nervous system a break, a reboot..a chance to breathe. I can’t remember what that feels like, to have this anvil lifted off my chest, to walk freely, uninhibited by the pain. I only ask for your help because I do need to.
I have been to the CHANGEpain clinic on two separate occasions for one Day Ketamine Therapy Treatments since starting the fund last summer, and I am now on the cusp of a 2 Day, back to back, Ketamine Infusion. On both of these days I will receive 8 hours of Ketamine IV Therapy, thus increasing the effectiveness and the duration of my “Paincation” (think remission here). Doctors who administer Ketamine IV treatments world wide agree that the best results come from a 4-5 day Infusion.
So why do I have to go to a private clinic and pay out of donations and my own pocket to be pain free?
These Ketamine treatments are covered by MSP only if administered in a BC Hospital Pain clinic. St. Pauls Hospital, up until Last October, was the only pain clinic in BC that offered this treatment. I had 30 or so ketamine IV treatments over the course of 4 years at St. Pauls Pain clinic, when they cut several CRPS patients loose.
Why you ask?
Another good Question….
Funding for one, as with all things.
And unless the attending physician believes in Ketamine IV treatments (because the hospital does not dictate treatments by Doctors), they won’t offer it. (a flaw in our medical system?)
I have recently followed up with St. Paul’s Hospital Pain Program, and was told that I do sit on a 2 -4 year wait list to receive an appointment, that could lead to an Ket IV treatment, and I have learned that the program is no longer offered to anyone outside of Vancouver (Which is Me) . St. Paul’s Pain Program has undergone some changes, Dr. Brenda Lau has taken a sabbatical, and another doctor has retired.
Needless to say, our “own” Victoria Pain Clinic is all but useless to me. My doctors referral led to an appointment 3 months away, then another, 3 months down the road, only to be told they couldn’t help me! What! a pain clinic that can’t help a person with the worse Pain syndrome known to man….and women? We asked the doctors there about Ketamine IV treatments that were being done at other pain clinics around the world, and were met with blank stares……”we don’t offer Ketamine here”…..
So, with less staff, less funding, and doctors that aren’t educated in the use of Ketamine for pain….. means no Ketamine for me. Or others within BC’s Health care system!
Would a BC Hospital deny a cancer victim their chemo? No
Would they deny you Dialysis if you needed it? No
Why am I a Canadian Woman not receiving fair health care for my pain treatments? Why must I suffer at all?..all I want is a life with a little less pain to enjoy my family and friends. I shall have my happiness despite your lack of caring.
I have literally come full circle in my pain journey, once again sitting in the hot seat of MSP, on the quest for ketamine to be once again available and covered.. ON my first time around looking for a Pain Specialist and Ketamine Treatments I went to my MLA, wrote letters…and they were heard. The most valuable call was from Ottawa to Nova Scotia where I was referred to their colleague Dr. Brenda Lau. She is Pain & Patient Care in BC. She saw the need, created it, shared her knowledge, and is continuing to change pain.
I am taking a day at time, saving and fundraising when I can. After my 2 Day Ketamine IV Therapy this week the well will run dry. I plan to fundraise with selling some of my crafts (based on the availability of artists health) to locals. I will continue to work to raise awareness of CRPS, and offer support to other CRPS sufferers that come along the way.
….sorry for the long rant…..it just spills out sometimes….
Hugs to you all,
I’m so grateful to everyone who has contributed to my GOFUNDME account!!